Parkinsons Disease

merlin · December 2022

I'm really sorry to hear this. Must be awful.

CharlieShaw · December 2022

A friend of mine got it when he was 39! He stopped working there and then. It’s Nearly 20 years ago now. I’ve not seen him in a long time. Keep thinking I should look him up.

strumjoughlamps · June 2023

I shall post an update as it helps me.

I have had my meds upped again, stronger and more of.. on the plus side when I am switched on I feel almost normal, when I am off I am a zombie, walking straight is a problem I bump into things, I don't fall much now tho. Off days will be up in the morning back sleep within the hour up again in the afternoon, potter around the house..

But lets focus on the switched on days, which currently has been all week.... GOLF GOLF GOLF, whatever it is about PD and golf that allows me to play is amazing, I cannot do 18 as I tire on the back 9 so I only do 18 if a cart is available, but wow can I play golf now, I have had lessons and it just dialled in everything.

VR has also been a surprise, or some will say not a surprise. When I cannot manage walking VR has been awesome, much better to be up swinging your arms and using your brain than be slumped in a chair. GOLF+, Synth Riders, Beat Saber, Virtuoso and Kingspray Graffiti keep me ticking when I cannot manage a walk.

Rocksmith has also got me into playing a bit of guitar again, using Rocksmith to learn a song helps trigger the brain to body problems I now endure. I still drum too but don't rely on my right hand to do much, I have actually improved.

Life is much better when focussing on the ups...

Nitefly · June 2023

Thanks for the update, sounds like things are going as well as they can. Are you still on the two-day week?

HerbieTheRadDorklift · June 2023

Sounds great! How's the work? Managing OK on reduced income?

strumjoughlamps · June 2023

Nitefly said:

Thanks for the update, sounds like things are going as well as they can. Are you still on the two-day week?

HerbieTheRadDorklift said:

Sounds great! How's the work? Managing OK on reduced income?

Yeah still on 2 days a week work, if you can call it work

an absolute blessing I work for local authority.

Income wasn't reduced as such as when I went PT the wife went FT.

HerbieTheRadDorklift · June 2023

strumjoughlamps said:

Nitefly said:

Thanks for the update, sounds like things are going as well as they can. Are you still on the two-day week?

HerbieTheRadDorklift said:

Sounds great! How's the work? Managing OK on reduced income?

Yeah still on 2 days a week work, if you can call it work an absolute blessing I work for local authority.

Income wasn't reduced as such as when I went PT the wife went FT.

Great that it worked out like that.

bertie · June 2023

good to hear so many positives mate.

Kittyfrisk · June 2023

Amazingly positive news. The VR aspect is something that I probably wouldn't have considered but when you describe it, it makes real sense.
Hope that balancing your meds gets better & improves your quality of life.

strumjoughlamps · September 2023

How quick damn PD moves on..

Hospital appointment today.. meds upped again

and being referred to specialists in Nottingham. I am now on last stage level 3 medication.. there are 4 levels and level 4 meds are bad news (hallucinations, sudden sleep attacks, confusion)..

Takes the piss

On the upside, I have 2 x 750ml bottles of Leffe and an egg custard in the fridge.

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Parkinsons Disease

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