Parkinsons Disease

strumjoughlamps · May 2020

Early stage Parkinson’s confirmed, and it is early, I am not too concerned.

it just made it real.

Snags · May 2020

That's a bugger

Have had various friends with it over the years. One at the moment is on some kind of trial programme (I think it's still in trials) and seems to be doing really well, so fingers crossed ...

ESBlonde · May 2020

A bugger indeed!

Current medical developments whilst not available next week, suggest there is hope. I'm sending good vibes and wishes.

boogieman · May 2020

Blimey Dave, that’s a shocker. How old are you? Is it any better treatment-wise for you that you’ve developed it comparatively young?

strumjoughlamps · May 2020

boogieman said:

Blimey Dave, that’s a shocker. How old are you? Is it any better treatment-wise for you that you’ve developed it comparatively young?

48 but I put it down to an essential tremor, probably was 46 when first noticed. Too early for heavy treatments they like to wait til absolute needed. Currently only needing tabs to reduce shake in right hand.

horse · May 2020

One of my wife's best mates was diagnosed around new year, age about 45 I think. She had been noticing symptoms getting worse for quite a few months and it was noticeable in her walk etc.

The good news is that her medication has made a massive difference for her and her life is much more back to normal at the moment.

All the best for managing it going forward.

Teyeplayer · May 2020

Just be careful and ask LOTS of questions. A friend was misdiagnosed, the medication created the symptoms and he proceeded to become more and more unwell. Don’t accept a diagnosis and just go with it; question the stages, question the treatment. The meds can do the most damage. Very very best of luck.

Nitefly · May 2020

Ooh, sorry to hear that, Strumster, but at least you do have it confirmed now.

Best wishes to you.

joneve · May 2020

fucksake. Sorry to hear that Dave

Wishing you all the best.

My grandfather had it, so I have a slight concern that it may be passed down genetically.

RobDavies · May 2020

Sorry to hear that, chap.

My Grandfather had Parkinson’s...albeit mildly.... lived well into his eighties and it didn’t affect his life too much apart from having to give up playing his beloved snooker.

Good luck with it.

wibble · May 2020

Shit. Sorry to hear that Dave

Hootsmon · May 2020

Thinking of you today Dave

John

merlin · May 2020

Really sorry to hear that, I hope you're doing OK in your head/heart.

strumjoughlamps · May 2020

Turns out I’m stage 1-2. Worst year ever.

MikeS · May 2020

I don't know you, Dave. But my love goes out to you and I wish you the best.

Grunfeld · May 2020

strumjoughlamps said:

Turns out I’m stage 1-2.

No, you're Dave.

You were Dave. You're still Dave.

and strumjoughlamps --- which honestly doesn't roll off the tongue but I prefer it to stage 1-2 which just sounds like a roadie doing a sound check.

You're still you.

strumjoughlamps · May 2020

Grunfeld said:

strumjoughlamps said:

Turns out I’m stage 1-2.

No, you're Dave.
You were Dave. You're still Dave.
and strumjoughlamps --- which honestly doesn't roll off the tongue but I prefer it to stage 1-2 which just sounds like a roadie doing a sound check.
You're still you.

Yeah just having a feeling sorry for myself moment... I have next week off which is going to include many rounds of golf.

apparently there will be little movement in my condition for a while now.

Tell you what tho, the things that can be found from things like blood tests and scans are absolutely amazing, and the timeframe in which they are done.

TTony · May 2020

Enjoy the golf.

Dave.

mgaw · May 2020

ffs and here's many of us worry about nonsense..very sorry to hear that Dave

Nitefly · May 2020

Grunfeld said:

strumjoughlamps said:

Turns out I’m stage 1-2.

No, you're Dave.
You were Dave. You're still Dave.
and strumjoughlamps --- which honestly doesn't roll off the tongue but I prefer it to stage 1-2 which just sounds like a roadie doing a sound check.
You're still you.

Actually, @Grunfeld , that has struck the faintest of chords in my memory.

I seem to to recall that "strumjoughlamps" was an amalgam or a piss-take of several other users' names, the only one of which I can now remember was JoughRustice - please tell me I'm not making that up?!

Grunfeld · May 2020

Nitefly said:

I can now remember was JoughRustice - please tell me I'm not making that up?!

@Nitefly It rings a bell but not with certainty. I’m often impressed by @DLM ’s forum memory.

boogieman · May 2020

Strum strum/ jough rustice / amber lamps.

I have a stupidly retentive memory but can’t really remember the significance of the names.

Sorry to hear the news Dave.

WiresDreamDisasters · May 2020

Damn man. That sucks.

Strat_a_tat_tat · May 2020

Sorry to hear about that. And you're fully entitled to feel sorry for yourself.... and then play lots of golf.

DLM · June 2020

First off, I'm very sorry to hear your news, Dave.

@Nitefly @Grunfeld @boogieman

boogieman said:

Strum strum/ jough rustice / amber lamps.

I'll answer for Dave as Oli has "challenged" me:

Our OP joined the intermusic/MusicRadar community as strumstrum and would occasionally post a clip of music, referring to it as "a new strum".

We had a member who played in a band called Rough Justice who would pimp his act constantly. I remember him having a nice collection of EBMM guitars (also played by his co-guitarist in the band IIRC), and posting often about RATT*, which he always capitalised. Before the community moved to tFB, parody accounts were often tolerated at least for a time, and strumstrum also signed up as JoughRustice to poke fun at the Rough Justice guy always bigging up his band.

Amber Lamps is derived from the AC Transit Bus fight viral video quote: "I need an ambulance". Drew @WiresDreamDisasters went by the handle Amberience at one time, though I don't think Strum was referencing that, or that Drew had "amberlamps" in mind with his name either.

How did I do?

We had some great fun in previous iterations of this community. I really miss J-Mo and BJ, neither of whom I ever met.

*I've been listening to them a bit recently, being something of a latecomer to their music, though very familiar with their scene.

strumjoughlamps · June 2020

Blooming hell FBI agent @DLM

guitars4you · June 2020

Sorry to hear such news - Best wishes - Mark

Snap · June 2020

aw Dave, that's tough news. Keep well, and as someone said, ask loads of questions about any treatment and what's available. There are quite a few things in development for Parkinson's at the moment, and not before time.

Jalapeno · June 2020

Well you've every right to be feeling sorry for yourself mate ! Enjoy the golf ! Focus on you and work through the bucket list !!!!!!

boogieman · June 2020

DLM said:

First off, I'm very sorry to hear your news, Dave.

@Nitefly @Grunfeld @boogieman

boogieman said:

Strum strum/ jough rustice / amber lamps.

I'll answer for Dave as Oli has "challenged" me:

Our OP joined the intermusic/MusicRadar community as strumstrum and would occasionally post a clip of music, referring to it as "a new strum".

We had a member who played in a band called Rough Justice who would pimp his act constantly. I remember him having a nice collection of EBMM guitars (also played by his co-guitarist in the band IIRC), and posting often about RATT*, which he always capitalised. Before the community moved to tFB, parody accounts were often tolerated at least for a time, and strumstrum also signed up as JoughRustice to poke fun at the Rough Justice guy always bigging up his band.

Amber Lamps is derived from the AC Transit Bus fight viral video quote: "I need an ambulance". Drew @WiresDreamDisasters went by the handle Amberience at one time, though I don't think Strum was referencing that, or that Drew had "amberlamps" in mind with his name either.

How did I do?

We had some great fun in previous iterations of this community. I really miss J-Mo and BJ, neither of whom I ever met.

*I've been listening to them a bit recently, being something of a latecomer to their music, though very familiar with their scene.

Wow, well remembered that man.

The RATT thing was hilarious, I remember that someone on the MR admin team altered the forum software so that whenever anyone typed RATT, it changed the words to “pretentious rock bollocks” or something similar.

I always suspected it was Simon Bradley, he had a wicked sense of humour.

UnclePsychosis · June 2020

Scary stuff. Sending internet mojo.

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Parkinsons Disease

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